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Autism has no Cure, there is no magic remedy for speech or autism but much more can be done to improve quality of life of whole family, in a reasonable time span with Goal Directed Cognitive Approach. - Dr Kondekar
Lets help every child Look Listen Respond Follow and Learn communication.
Communication cannot be with non living beings, its important to take the child out of object or toy world and out of isolation to make him Social and not just Special.
Respond not React. Gain positivity every day, set goals every month.
Killing negativity [sensory/gut/hyperness/distraction] is first step to positivity.
**Dr Kondekar's Goal Directed Cognitive Approach: Change the Goals, See the Change
Donot get trapped by phrases such as mild autism, virtual autism, bordeline autism or score is less than 30 etc. Severity should not decided by scores, as scores can change with efforts. Severity is decided by level of dependency, independent autism usually shouldnot reach a dr or therapist. Dependent /partial dependent will have potential to turn to independent. Completely dependent usually have issues related to day to day living and communication, even that can be eased out with efforts. Almost all children below age 5 , are dependent on parents; so its unwise tp use such phrases. Whatever may be the level of dependency, we should work hard towards independency and mainstreaming, by generating awareness, cognition, ability, coordination, organisation, communication, conversation, socialisation and oration. simultaneously managing sensory, behavioural and repititive or restrictive issues as and when they arise.
Technically autism is a learning disability, a sensory counterpart of Cerebral palsy, child fails to learn basics of understanding senses, cognition and learning; their integration and failure of learning logical thinking needed for executive functioning. When we generate synapses, we initiate learning. - Dr Kondekar
Symptoms of autism are actually a result of cognitive block, the development of cognition being stuck at some basic level, out of many; actually being a step in normal development, but being stuck for months appears abnormal. it needs a boost, to come out of the cognitive block and nonliving or isolated world of solo-ness. Dr Kondekar
Autism is autism, its a social communication deficit with repeated restrictive or behaviour issues. Its not ADHD or attention deficit alone, dont confuse the terms. ADHD is not a social communication issue.
Each one has separate diagnostic criteria and diagnosis shall be done when other diagnosis solely doesnt explain the issues.
Ask for rule of reversal in Autism symptom complex.
Each one has separate diagnostic criteria and diagnosis shall be done when other diagnosis solely doesnt explain the issues.
Ask for rule of reversal in Autism symptom complex.
REMEMBER: Every Child with communication /socialisation or behaviour issues is NOT autism. But its better to assess evaluate these kids with autism questionaire so that we dont miss out any, and may help stop them progressing.following forms 1 and 2 need to be filled to give adequate information of your case to Dr Online. Form 3 is follow up visit form.FORM1 Neuro Developmental HistoryFORM2 for DSM5 autism historyFORM3 follow up History FORM 4: fill up "Case Result form" to record improvements in your kid after 3 months of treatment
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Above sheets can be filled and sent to Dr kondekar Across whatsapp 9869405747
If you are a parent of autism kid under treatment of Dr Kondekar for more than 1 month, use the following form to fill case response form . This form can be filled in 5 minutes to record various positive changes and other clinical information you wish to talk about. click here https://forms.gle/sfhEDXoeRnPFJPUUA
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Tests in Autism
Actually Dr Kondekar Doesnot advise any tests in Autism. Actually in most cases of autism, tests are not needed for diagnosis or monitoring or treatment.
ASSESSMENT TESTS:
Diagnosis of Autism is by questionnaires. For process of certification the ISAA questionnaire or INCLEN _AIIMS is recommended in Indian Law. Actually most questionnaire based tests are based on DSM IV criteria for autism, which is actually outdated after 2013 when DSM V is proposed.. In DSM V severity was decided by scores of DSM IV based tools like ISAA CARS ADOS 3di etc
There are very few questionnaires based on DSM V [ form 2 as above ] are available. AIIMS has modified its INCLEN tool as per DSM V.
The severity is not decided by scores but by level of disability.
actually test results are reports based answers to questions and observation by a pediatrician or therapist or psychologist. the test reports may change as per the answers given by parents and also often its natural for parents to go defensive when a question points out at some disability. Remember a level of development that is not consistent age appropriate and reciprocable will not be taken as positive development during that assessment.
So results may be different from person to person taking the test.
I RECOMMEND NOT TO GO BY TEST RESULTS BUT USE THEM FOR DOCUMENTATION ONLY.
OTHER TESTS :
OFTEN ARE FOR RESEARCH PURPOSES.>>>
1. BIOCHEMICAL BLOOD TESTS FOR RARE DISEASES ; THERE IS A LIST, OFTEN IN SEARCH OF ACCIDENTAL RARE METABOLIC DISEASE OF MENTAL RETARDATION REALTED ISSUES. RARELY OF SOME HELP IN GIVING SPECIFIC COCKTAIL MEDS. Like say homocysteine, CPK, TTG, b12, lead,etc I don't ask any of them on routine basis.
2. GENETIC TESTS - DEPENDING ON CLINICAL PICTURE, ITS OFTEN LIKE SAY FRAGILE X, MEPC2 ETC DNA/MLPA / MUTATION STUDIES OR KARYOTYPE, CHROMOSOMAL MICRO ARRAY, EXOME SEQUENCING WES/CES, AND TRIPLE TEST MAINLY THESE WILL BE OF HELP IN PREVENTING AUTISM IN NEXT PREGNANCY. CHK THE PDF ON THIS PAGE FOR WHY GENETIC.
3.NEUROIMAGING & EEG - FOR RESEARCH PURPOSES AND IN CASES OF EPILEPSY OR SYNDROME SUSPECTED. DR KONDEKAR PREFERS MRI BRAIN MRS WITH TRACTOGRAPHY OR PET, PRE AND POST TREATMENT OF SIX MONTH.
4. TESTS DONE FOR IMMUNITY FUNGUS TOXIN METALS AND MICROBIOME ASSAY --- NOT RECOMMENDED AT ALL FOR DIAGNOSIS OF AUTISM..
FOR ANY TESTS RELATED INFORMATION WHATSAPP 9869405747 FOR FREE ADVICE
Actually Dr Kondekar Doesnot advise any tests in Autism. Actually in most cases of autism, tests are not needed for diagnosis or monitoring or treatment.
ASSESSMENT TESTS:
Diagnosis of Autism is by questionnaires. For process of certification the ISAA questionnaire or INCLEN _AIIMS is recommended in Indian Law. Actually most questionnaire based tests are based on DSM IV criteria for autism, which is actually outdated after 2013 when DSM V is proposed.. In DSM V severity was decided by scores of DSM IV based tools like ISAA CARS ADOS 3di etc
There are very few questionnaires based on DSM V [ form 2 as above ] are available. AIIMS has modified its INCLEN tool as per DSM V.
The severity is not decided by scores but by level of disability.
actually test results are reports based answers to questions and observation by a pediatrician or therapist or psychologist. the test reports may change as per the answers given by parents and also often its natural for parents to go defensive when a question points out at some disability. Remember a level of development that is not consistent age appropriate and reciprocable will not be taken as positive development during that assessment.
So results may be different from person to person taking the test.
I RECOMMEND NOT TO GO BY TEST RESULTS BUT USE THEM FOR DOCUMENTATION ONLY.
OTHER TESTS :
OFTEN ARE FOR RESEARCH PURPOSES.>>>
1. BIOCHEMICAL BLOOD TESTS FOR RARE DISEASES ; THERE IS A LIST, OFTEN IN SEARCH OF ACCIDENTAL RARE METABOLIC DISEASE OF MENTAL RETARDATION REALTED ISSUES. RARELY OF SOME HELP IN GIVING SPECIFIC COCKTAIL MEDS. Like say homocysteine, CPK, TTG, b12, lead,etc I don't ask any of them on routine basis.
2. GENETIC TESTS - DEPENDING ON CLINICAL PICTURE, ITS OFTEN LIKE SAY FRAGILE X, MEPC2 ETC DNA/MLPA / MUTATION STUDIES OR KARYOTYPE, CHROMOSOMAL MICRO ARRAY, EXOME SEQUENCING WES/CES, AND TRIPLE TEST MAINLY THESE WILL BE OF HELP IN PREVENTING AUTISM IN NEXT PREGNANCY. CHK THE PDF ON THIS PAGE FOR WHY GENETIC.
3.NEUROIMAGING & EEG - FOR RESEARCH PURPOSES AND IN CASES OF EPILEPSY OR SYNDROME SUSPECTED. DR KONDEKAR PREFERS MRI BRAIN MRS WITH TRACTOGRAPHY OR PET, PRE AND POST TREATMENT OF SIX MONTH.
4. TESTS DONE FOR IMMUNITY FUNGUS TOXIN METALS AND MICROBIOME ASSAY --- NOT RECOMMENDED AT ALL FOR DIAGNOSIS OF AUTISM..
FOR ANY TESTS RELATED INFORMATION WHATSAPP 9869405747 FOR FREE ADVICE
for appointment procedure instructions : visit www.pedneuro.in
disclaimer: click here
chat.whatsapp.com/LWQNrWlzB4hG4nz2MMKGEd Important points to note: FREE AUTISM PARENTING HELP
If you are an Indian Parent, and wish to join parent support group for autism please join Whatsapp support group of parents at http://bit.ly/whatsappautism5 [gr 1,2,3,4,7 are full.]
If you are a non Indian Parent wish to join parent support group for autism please join whatsapp support group of overseas parents at http://bit.ly/whatsappautismabroad
FOR SENSORY PROFILE / OT ASSESSMENT AND ONLINE OT WHATSAPP 9967516414 DR DEEPALI
If you are an Indian Parent, and wish to join parent support group for autism please join Whatsapp support group of parents at http://bit.ly/whatsappautism5 [gr 1,2,3,4,7 are full.]
If you are a non Indian Parent wish to join parent support group for autism please join whatsapp support group of overseas parents at http://bit.ly/whatsappautismabroad
FOR SENSORY PROFILE / OT ASSESSMENT AND ONLINE OT WHATSAPP 9967516414 DR DEEPALI
All member of the group please understand group rules.
Cross talks will be preferably in pm.
Only experts will reply to questions
Guidance from nonexperts is strongly discouraged.
We all are here to find some change in our own kid so avoid general questions.
We believe in change and positivity and not calling the kids as special.
We don't believe in wait and watch for decades.
Please write one long message instead of writing one by one lines.
The more we understand your case better will b plan
Use the experts in group for day to day tips and modifications.
Avoid discussing about medicines in group as each kid needs separate assessment / individualisation Loose talks will get loose results.
Positive, Hopeful and confident parents have faster outcomes in their kids than anxious, paranoid, doubting and misguided parents. Parents health and sound understanding of the problem and situation is extremely important. And hence is the Whatsapp helpline for parents 9869405747
Develop trust, believe in GOD [science] be hopeful, effortful and persistent yet flexible. Accept the labels, enable the disability... Lets help every kid be a mainstream society member. Dr Kondekar
PLEASE GO THROUGH FILES BELOW:
Cross talks will be preferably in pm.
Only experts will reply to questions
Guidance from nonexperts is strongly discouraged.
We all are here to find some change in our own kid so avoid general questions.
We believe in change and positivity and not calling the kids as special.
We don't believe in wait and watch for decades.
Please write one long message instead of writing one by one lines.
The more we understand your case better will b plan
Use the experts in group for day to day tips and modifications.
Avoid discussing about medicines in group as each kid needs separate assessment / individualisation Loose talks will get loose results.
Positive, Hopeful and confident parents have faster outcomes in their kids than anxious, paranoid, doubting and misguided parents. Parents health and sound understanding of the problem and situation is extremely important. And hence is the Whatsapp helpline for parents 9869405747
Develop trust, believe in GOD [science] be hopeful, effortful and persistent yet flexible. Accept the labels, enable the disability... Lets help every kid be a mainstream society member. Dr Kondekar
PLEASE GO THROUGH FILES BELOW:
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| why-genetic-tests-in-autism.pdf |
#makingsense by Dr Kondekar SV Mumbai India
Please watch simplified you tube video on ABCDE of autism By Dr Kondekar, explaining how DSM 5 Autism criteria guides recovery https://youtu.be/bi5cq0nIDs0
GOALS: STEPWISE AS PER LEVEL
1. MAKE A CHILD SIT, AT ONE PLACE AND GIVE EYE CONTACT
2. MAKE THE STUDENT UNDERSTAND SERIOUSNESS, STUDY
3. MAKE THE CHILD REDUCE DISTRACTABILITY
4. MAKE THE CHILD ATTENTIVE
5. IMPROVE SPEECH, LANGUAGE, COMMUNICATION
5. IMPROVE PRAGMATICS, GRAMMER, COMPREHENSION AND COMPOSITION
7. HELP UNDERSTAND LEARNING PROCESS
8. HELP UNDERSTAND COMPLEX LEARNING
9. FLUENT READING, FLUENT TALKING
10. STRUCTURED LEGIBLE WRITING, IMPROVE COGNITION AND INTEREST IN PRODUCTIVE LEARNING
11. TREAT ASSOCIATED NEURO CO MORBIDITIES
12. TACKLE ISSUES RELATED TO SENSORY, MOTOR BEHAVIOR, DISCIPLINE AND SOCIALISATION BUILDING A PERSONALITY
- DR KONDEKAR
1. MAKE A CHILD SIT, AT ONE PLACE AND GIVE EYE CONTACT
2. MAKE THE STUDENT UNDERSTAND SERIOUSNESS, STUDY
3. MAKE THE CHILD REDUCE DISTRACTABILITY
4. MAKE THE CHILD ATTENTIVE
5. IMPROVE SPEECH, LANGUAGE, COMMUNICATION
5. IMPROVE PRAGMATICS, GRAMMER, COMPREHENSION AND COMPOSITION
7. HELP UNDERSTAND LEARNING PROCESS
8. HELP UNDERSTAND COMPLEX LEARNING
9. FLUENT READING, FLUENT TALKING
10. STRUCTURED LEGIBLE WRITING, IMPROVE COGNITION AND INTEREST IN PRODUCTIVE LEARNING
11. TREAT ASSOCIATED NEURO CO MORBIDITIES
12. TACKLE ISSUES RELATED TO SENSORY, MOTOR BEHAVIOR, DISCIPLINE AND SOCIALISATION BUILDING A PERSONALITY
- DR KONDEKAR
In Mumbai India ?: call for details 7021713681 Developmental Neuro Pediatrician Mumbai. Neuro history
Pediatric Neuro Developmental Active Therapeutic Services (PNAS):
A Need based Novel Multidisciplinary Structured Coordinated and Convenient Approach for Positive Outcome towards Quality of Life in Differently Abled and Neurodisabled Children.
PACE SERVICES:
AAKAAR CLINIC, FIRST FLOOR, LAXMI RESIDENCY, OPP BYCULLA WEST STATION. BYCULLA WEST MUMBAI
8693893295/9869405747
Pediatric Neuro Developmental Active Therapeutic Services (PNAS):
A Need based Novel Multidisciplinary Structured Coordinated and Convenient Approach for Positive Outcome towards Quality of Life in Differently Abled and Neurodisabled Children.
PACE SERVICES:
AAKAAR CLINIC, FIRST FLOOR, LAXMI RESIDENCY, OPP BYCULLA WEST STATION. BYCULLA WEST MUMBAI
8693893295/9869405747
HAND IN HAND HELPING THE DISEASED RARE AND DISABLED NEURO KIDS
how are parents the key factor for outcome of neurodisabled child?
DYSLEXIA IS NOT A DEAD END BUT A MODIFIABLE DISABILITY/DISORDER
DO MEDICINES HAVE A ROLE?
DOES THERAPY HAVE A ROLE?
WHAT IS SPECIFIC REMEDIAL EDUCATION?
WHATSAPP 91- 9869405747
Sunce 2013, dyslexia is no longer a diagnosis; its no longer called a disability, but a disorder. DSM V classifies it under SLD, Specific Learning Disorders
315.00 Specific learning disorder with impairment in reading includes possible deficits in:Word reading accuracy,Reading rate or fluency,Reading comprehension.315.2 Specific learning disorder with impairment in written expression includes possible deficits in: Spelling accuracy, Grammar and punctuation accuracy,Clarity or organization of written expression.
315.1 Specific learning disorder with impairment in mathematics includes possible deficits in:Number sense, Memorization of arithmetic facts, Accurate or fluent calculation, Accurate math reasoning, .
DO MEDICINES HAVE A ROLE?
DOES THERAPY HAVE A ROLE?
WHAT IS SPECIFIC REMEDIAL EDUCATION?
WHATSAPP 91- 9869405747
Sunce 2013, dyslexia is no longer a diagnosis; its no longer called a disability, but a disorder. DSM V classifies it under SLD, Specific Learning Disorders
315.00 Specific learning disorder with impairment in reading includes possible deficits in:Word reading accuracy,Reading rate or fluency,Reading comprehension.315.2 Specific learning disorder with impairment in written expression includes possible deficits in: Spelling accuracy, Grammar and punctuation accuracy,Clarity or organization of written expression.
315.1 Specific learning disorder with impairment in mathematics includes possible deficits in:Number sense, Memorization of arithmetic facts, Accurate or fluent calculation, Accurate math reasoning, .
Dr Kondekar's Recent Lecture on Therapeutic Options/Disabilities [Controversies and confusion] in Treatment of Autism/LD >>>>>>>>>>>>>>>>>
Comprehensive Child Care Core Consultancy in Clinical Child Neurology, Mumbai
NeuroDiagnosisUnderstanding a difficult child or delayed child or an autistic or hyperactive child is not easy. So is its certification by a specialist depending on various screening tools and investigations. This involves Developmental Pediatric specialist and at times investigations like neuroimaging, EEG or Blood tests.
Some children do need MRI scans for diagnosis, BERA, VEPs for sensory assessments. Some diseases are neurometabolic and genetic and may need special biochemistry and karyotype. NeuroModulationChild's brain responds to interventions by modulations. Its a sort of training for the plasticity of brain by which neurons get trained and supertrained to be more efficient next time. Selectively encouraging specific issues and inhibiting few, neuromodulation results in parent satisfaction and improvement of quality of life.
sensory integration and postural and tone managements at times with medicines may prove key for specific targetted vocational outcomes. |
NeuroSupportiveMost issues related to development and neurology are comorbid, interlinked and collectively resulting in poor outcome. May be it, a psycho social or language issue.. or a nutritional one. Pediatricians helps understand the parallel and supportive maintenance of other systems while the problem is being stressed on. Diet/ Medicines for brain nourishment, general growth,seizures,spasticity,ADD, hyperactivity, etc and family based support is key for accepting newer therapies.
NeuroInterventionDiagnostic and therapeutic interventions help the parents understand the process of development with the help fo therapist. With involvement of parents in the interventions, often therapists may support a child to regain or develop a milestone in given situation. Neuro intervention is a continuous process till achievement of a satisfactory result.
physical therapist and occupational therapist help in sensory integrated interventions. |
All diseases are not curable, most are modifiable.. so much so that without intervention and therapy life would have been miserable. Aim of our services is to make each child manageable for day to activities, education and psychosocial metamorphosis. each child does respond differently to interventions, some children take a longer time {years} depending on seriousness of issues; leaving hopes is no good Rather we start giving hopes when other tend to lose them. Structured efforts are key to modulations.
Download breathing diary, our immunisation chart timetable, dr sk curriculum vitae CV,android health advice application/app/apk for mobile,various links to dr's TV shows, chats, blogs and more than 4000 free online answers.. free consultation scheme etc ..MORE
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